BMC Public Health
Volume 19, Issue 1, 2019

Wanting to or having to - A qualitative study of experiences and attitudes towards migrant screening for tuberculosis in Norway (Article) (Open Access)

Nordstoga I. , Drage M. , Steen T.Wæ. , Winje B.A.*
  • a LHL International Tuberculosis Foundation, Oslo, Norway
  • b LHL International Tuberculosis Foundation, Oslo, Norway
  • c Health Agency, City of Oslo, Norway
  • d Norwegian Institute of Public Health, Oslo, Norway

Abstract

Background: This study assesses how tuberculosis (TB) screening is perceived by immigrants in Norway. Screening is mandatory for people arriving from high incidence countries. To attend screening, immigrants have to contact the health system after receiving an invitation by letter. The proportion of non-attenders is not known, and there are no sanctions for not attending. Generally, only persons who test positive receive test results. The study explores users' experiences, attitudes and motivations for attending or not attending TB screening, and perceived barriers and enablers. Methods: We conducted six focus group discussions and three individual interviews with 34 people from 16 countries in Africa, Asia and Europe. Interviews were recorded and transcribed, and data was coded following a general inductive approach: All transcribed text data was closely read through, salient themes were identified and categories were created and labelled. The data was read through several times and the category system was subsequently revised. Results: Most appreciated the opportunity to be tested for a severe disease and were generally positive towards the healthcare system. At the same time, many were uncomfortable with screening, particularly due to the fear and stigma attached to TB. All experienced practical problems related to language, information, and accessing facilities. Having to ask others for help made them feel dependent and vulnerable. Positive and negative attitudes simultaneously created ambivalence. Many wanted "structuring measures" like sanctions to help attendance. Many said that not receiving results left them feeling anxious. Conclusions: In order to adapt the system and improve trust and patient uptake, all aspects of the screening should be taken into account. Ambivalence towards screening probably has a negative impact on screening uptake and should be sought reduced. A combination of ambivalence and a wish for "structuring measures" leads the authors to conclude that mandatory screening is a reasonable measure. However, since mandatory screening negatively impacts patient autonomy, and because of fear, stigma and practical problems, the health system should empower users by improving communication and access to services. In addition, it is recommended that negative test results are also communicated to the users. © 2019 The Author(s).

Author Keywords

Screening Health Communication immigrants Autonomy tuberculosis Stigma Health literacy Ambivalence Accessibility

Index Keywords

information processing mass screening Norway Europe motivation human Asia statistics and numerical data ethnology qualitative research Humans migrant psychology male Emigrants and Immigrants female tuberculosis Africa adult Focus Groups attitude to health Health Services Accessibility health care delivery

Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-85068511521&doi=10.1186%2fs12889-019-7128-z&partnerID=40&md5=16f350c9057014f236c34156f9183d04

DOI: 10.1186/s12889-019-7128-z
ISSN: 14712458
Original Language: English