BMC Pregnancy and Childbirth
Volume 19, Issue 1, 2019

Written narratives from immigrants following a prenatal diagnosis: Qualitative exploratory study (Article) (Open Access)

Carlsson T.* , Balbas B. , Mattsson E.
  • a Sophiahemmet University, Stockholm, SE-114 86, Sweden, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden
  • b Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden
  • c Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden, Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden

Abstract

Background: Expectant parents often have optimistic expectations of the obstetric ultrasound examination and are unprepared for a diagnosis of foetal anomaly. Research that gives voice to the experiences of immigrants faced with a prenatal diagnosis is scarce, and there is a need for more exploratory research that provides insights into the experiences of these persons. The aim of this study was to explore narratives of experiences of immigrants with Arabic or Sorani interpreter needs when presented with a prenatal diagnosis of foetal anomaly. Methods: A web-based tool with open-ended questions was distributed via Arabic and Kurdish non-profit associations and general women's associations in Sweden. Responses were received from six women and analysed with qualitative content analysis. Results: The analysis resulted in three themes: (1) an unexpected hurricane of emotions, (2) trying to understand the situation though information in an unfamiliar language, and (3) being cared for in a country with accessible obstetric care and where induced abortion is legal. Conclusions: Immigrant women described an unexpected personal tragedy when faced with a prenatal diagnosis of foetal anomaly, and emphasised the importance of respectful and empathic psychological support. Their experiences of insufficient and incomprehensible information call attention to the importance of tailored approaches and the use of adequate medical interpreting services. There is a need for more descriptive studies that investigate decision-making and preparedness for induced abortion among immigrants faced with a prenatal diagnosis. © 2019 The Author(s).

Author Keywords

immigrants Counselling Prenatal diagnosis Consumer health information Support

Index Keywords

personal experience induced abortion communication barrier consumer health information immigrant narrative human decision support system qualitative research Sweden Arabic (language) counseling female Prenatal Diagnosis Article legal abortion emotion interpreter service adult exploratory research content analysis obstetric procedure clinical decision making open ended questionnaire fetus malformation non profit organization

Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-85065642689&doi=10.1186%2fs12884-019-2292-9&partnerID=40&md5=7402d642649af5a83f64e13491f219d2

DOI: 10.1186/s12884-019-2292-9
ISSN: 14712393
Original Language: English