Journal of Psychosocial Oncology
Volume 37, Issue 3, 2019, Pages 383-397

Challenges and perceived unmet needs of Chinese migrants affected by cancer: Focus group findings (Article)

Lim B.T.* , Butow P. , Mills J. , Miller A. , Pearce A. , Goldstein D.
  • a Cancer Council NSW, Practical Support Unit, Sydney, Australia
  • b Psycho-Oncology Co-Operative Research Group, The University of Sydney, NSW, Australia
  • c Cancer Council NSW, Practical Support Unit, Sydney, Australia
  • d Cancer Council NSW, Practical Support Unit, Sydney, Australia
  • e Cancer Council NSW, Practical Support Unit, Sydney, Australia
  • f Department of Medical Oncology, Prince of Wales Hospital, NSW, Australia

Abstract

Objectives: Chinese migrant cancer survivors and carers face multiple barriers to accessing quality cancer information and support. This study aimed to explore the challenges and unmet needs experienced by the Australian Chinese community affected by cancer, and understand the contexts that hindered optimal care for this community. Methods: Adult cancer survivors and carers, whose native language is Mandarin or Cantonese, were recruited through community cancer support organizations. Bilingual researchers conducted focus groups with participants in either Mandarin or Cantonese. Focus groups were audio-recorded, transcribed, translated into English and thematically analyzed using qualitative methods. Findings: 62 Chinese-speaking participants (34 cancer survivors and 28 carers) participated in one of the eight focus groups conducted. The three main themes were (1) unmet information and support needs (trust, wellness, and rights); (2) barriers compounding unmet needs (language, health literacy, culture); and (3) participants’ recommendations regarding cancer information and support provision. Seven subthemes of unmet needs were also identified: Trust (e.g., communication barriers, health system barriers, comparison regarding the care received), wellness (e.g., cultural differences produce conflict on views about wellness, need for psychological, community, and spiritual support), and rights (e.g., low awareness of financial and legal assistance, other factors increasing or reducing vulnerability). Conclusions: This study highlights the needs and provides new insights into the impact of language, culture and health literacy barriers on the unmet information and support needs of the Chinese community affected by cancer. The key findings will inform the development of culturally targeted information and support resources for this community. © 2019, © 2019 Taylor & Francis Group, LLC.

Author Keywords

cancer culture English proficiency unmet needs Health literacy migrant

Index Keywords

communication barrier scientist human cancer survival mandarin organization nonhuman language speech migrant Trust cancer survivor male female qualitative analysis Article spiritual care genetic transcription major clinical study awareness adult human experiment health literacy legal service

Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-85061056842&doi=10.1080%2f07347332.2018.1551261&partnerID=40&md5=fa561d2752850d1fba05c431f5818618

DOI: 10.1080/07347332.2018.1551261
ISSN: 07347332
Original Language: English