BMC Pregnancy and Childbirth
Volume 16, Issue 1, 2016

Experiences and preferences of care among Swedish immigrants following a prenatal diagnosis of congenital heart defect in the fetus: A qualitative interview study (Article) (Open Access)

Carlsson T.* , Marttala U.M. , Mattsson E. , Ringnér A.
  • a Uppsala University, Department of Public Health and Caring Sciences, BMC Husargatan 3, Box 564, Uppsala, S-75122, Sweden
  • b Uppsala University, Department of Scandinavian Languages, Uppsala, Sweden
  • c Uppsala University, Department of Public Health and Caring Sciences, BMC Husargatan 3, Box 564, Uppsala, S-75122, Sweden, Ersta Sköndal University College, Department of Health Care Sciences, Stockholm, Sweden
  • d Umeå University, Department of Nursing, Umeå, Sweden

Abstract

Background: Immigrants experience significant challenges when in contact with healthcare and report less satisfaction with maternity care compared to native Swedes. Research that gives voice to pregnant immigrant women and their partners following a prenatal diagnosis of a fetal anomaly is scarce. Thus, the aim of this study was to explore experiences and preferences of care following a prenatal diagnosis of congenital heart defect among Swedish immigrants. Methods: Pregnant immigrants and their partners were consecutively recruited following a prenatal diagnosis of a congenital heart defect in the fetus. Nine respondents were interviewed in five interviews, four with the aid of a professional interpreter. The material was analyzed using manifest qualitative content analysis. Results: The analysis resulted in five categories: 1) "Trustworthy information", 2) "Language barriers", 3) "Psychosocial situation", 4) "Peer support", and 5) "Religious positions". Conclusion: The potential need for interpreter services, visual information, psychosocial support, coordination with welfare officers, and respect for religious positions about termination of pregnancy are all important aspects for health professionals to consider when consulting immigrants faced with a prenatal diagnosis of fetal anomaly in the fetus. Peer support within this context needs to be further explored in future studies. © 2016 The Author(s).

Author Keywords

immigrants Pregnancy Prenatal diagnosis Life change events Interview

Index Keywords

personal experience communication barrier maternal care Communication Barriers immigrant social psychology interpersonal communication Swedish citizen human Pregnant Women controlled study social support religion qualitative research interview Sweden Humans migrant psychology Trust male Emigrants and Immigrants female Prenatal Diagnosis Religion and Psychology qualitative analysis pregnancy clinical article medical information peer group Article embryology congenital heart malformation Heart Defects, Congenital adult content analysis pregnant woman patient preference

Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-84971505828&doi=10.1186%2fs12884-016-0912-1&partnerID=40&md5=6a2ce048cb620f45417400d09595b77d

DOI: 10.1186/s12884-016-0912-1
ISSN: 14712393
Cited by: 1
Original Language: English