Journal of Intercultural Studies
Volume 37, Issue 2, 2016, Pages 103-117

The ‘Other’ in End-of-life Care: Providers’ Understandings of Patients with Migrant Backgrounds (Article)

Torres S.* , Ågård P. , Milberg A.
  • a Department of Sociology, Uppsala University, Uppsala, Sweden
  • b Department of Sociology, Uppsala University, Uppsala, Sweden
  • c Department of Advanced Home Care and Department of Social and Welfare Studies, Linköping University, Linköping, Sweden

Abstract

Research on how end-of-life care providers make sense of cultural, ethnic and religious diversity is relatively scarce. This article explores end-of-life care providers’ understandings of patients with migrant backgrounds through a study based on focus group interviews. The analysis brings to the fore three themes: the expectation that the existence of difference and uncertainty is a given when caring for patients with migrant backgrounds; the expectation that the extension of responsibility that difference entails creates a variety of dilemmas; and the expectation that difference will bring about misunderstandings and that patients’ needs can go unmet as a result of this. On the basis of these themes we suggest that the end-of-life care providers interviewed regard patients with migrant backgrounds as ‘Others’ and themselves as providers that cannot deliver so called culture-competent care. The findings are problematised using the lens that the debate on patient-centredness offers. The article suggests that if the uniqueness of all patients is to be seriously taken into account then ‘Othering’ is perhaps what patient-centredness actually entails. © 2016 Taylor & Francis.

Author Keywords

Cultural diversity Migration culture-competent care patient-centredness religious diversity end-of-life care Otherness

Index Keywords

[No Keywords available]

Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-84963657068&doi=10.1080%2f07256868.2016.1141756&partnerID=40&md5=2b913700d80265f0beb9e3ba06b024a3

DOI: 10.1080/07256868.2016.1141756
ISSN: 07256868
Cited by: 8
Original Language: English