Public Health Genomics
Volume 13, Issue 7-8, 2010, Pages 415-423

Turkish female immigrants' intentions to participate in preconception carrier screening for hemoglobinopathies in the Netherlands: An empirical study (Article)

Van Elderen T. , Mutlu D. , Karstanje J. , Passchier J. , Tibben A. , Duivenvoorden H.J.
  • a Department of Clinical and Health Psychology, Leiden University, Leiden, Netherlands
  • b Psychotherapeutic Center De Viersprong, Rotterdam, Netherlands
  • c Health Center Randweg, Gezondheidscentrum Randweg, Rotterdam, Netherlands
  • d Faculty of Psychology and Education, VU University of Amsterdam, Amsterdam, Netherlands
  • e Department of Medical Psychology and Psychotherapy, Erasmus University Medical Center Rotterdam, Dr. Molewaterplein 50, NL-3015 GE Rotterdam, Netherlands
  • f Department of Medical Psychology and Psychotherapy, Erasmus University Medical Center Rotterdam, Dr. Molewaterplein 50, NL-3015 GE Rotterdam, Netherlands

Abstract

Background: Preconception carrier screening for hemoglobinopathies (HbPs) is debated in the Netherlands. Objectives: Intentions to participate in preconception carrier screening for HbPs as well as informed reproductive options were assessed in 109 Turkish female immigrants. Method: Participants completed a structured questionnaire. Results: 83.5% of 109 Turkish female immigrants intended to participate in preconception carrier screening. Intention to participate was related to the desire to reduce uncertainty about having offspring affected by HbPs, but not with socio-demographic variables, risk-estimation and worrying. If the tests concerning carrier status for HbPs were confirmative for both partners, 36.3% (n = 33) of the women with the intention of preconception carrier screening would refrain from getting children of their own, including 14.3% (n = 13) opting for adoption, 37.4% (n = 34) would decide to become pregnant and to opt for prenatal testing on HbPs. Finally, among 37.4% of the women opting for prenatal testing, 30.3% (n = 10) would terminate an affected pregnancy, 18.2% (n = 6) not and 51.5% (n = 17) could not decide (1 missing value). Conclusion: A large majority of Turkish female immigrants would participate in preconception carrier screening for HbPs. Copyright © 2010 S. Karger AG, Basel.

Author Keywords

The Netherlands Preconception carrier screening Turkish female immigrants Hemoglobinopathies

Index Keywords

Netherlands maternal care immigrant prenatal care mass screening psychological aspect demography human risk assessment controlled study Turkey (republic) priority journal adoption religion Family Characteristics Young Adult social status Humans pregnancy termination Heterozygote Detection Adolescent Preconception Care Hemoglobinopathies Emigrants and Immigrants Genetic Testing female genetic screening empirical research heterozygote Prenatal Diagnosis pregnancy Article Questionnaires adult major clinical study patient participation Turkey Reproductive Health structured questionnaire attitude to health hemoglobinopathy
Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-78650225819&doi=10.1159%2f000314643&partnerID=40&md5=8c3607c2af8b216b24f985f2b7331b79
DOI: 10.1159/000314643
ISSN: 16624246
Cited by: 13
Original Language: English