Journal of Child and Family Studies
Volume 27, Issue 11, 2018, Pages 3468-3481

Immigrant Families’ Perception of the Causes, First Manifestations, and Treatment of Autism Spectrum Disorder (Article)

Millau M.* , Rivard M. , Mello C.
  • a Université du Québec à Montréal, Montreal, QC, Canada
  • b Université du Québec à Montréal, Montreal, QC, Canada
  • c The Pennsylvania State University, Berks, Reading, PA, United States

Abstract

Compared to families from their host country, families from immigrant backgrounds who have a child with autism spectrum disorder (ASD) tend to experience greater difficulties in accessing, using, and complying with intervention services for their child. This disparity may be partially accounted for by cultural differences in how families perceive the causes and symptoms of ASD as well as their treatment priorities. The present study sought to document these perceptions in immigrant families living in a Canadian city. Forty-five parents from Latin America, Africa, Western and Eastern Europe, the Caribbean, East Asia, and the Middle East participated in a semi-structured interview. These data were examined qualitatively through thematic analysis to first document all parents’ perceptions, then to contrast mothers’ and fathers’ responses, and finally to examine common themes as a function of country of origin. The most frequently mentioned causes of ASD were environmental factors such as vaccines and diet. Moreover, some participants did not know the cause of their child’s ASD. The majority of parents cited the absence of speech as one of the first symptoms noted in their child. Priorities for intervention varied: mothers tended to prioritize speech therapy, whereas fathers favored support in school. Taken as a whole, these findings highlight the need to implement informational programs for these families. © 2018, Springer Science+Business Media, LLC, part of Springer Nature.

Author Keywords

immigrant families Perception Cultural beliefs Autism spectrum disorder Parenting

Index Keywords

[No Keywords available]

Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-85049597038&doi=10.1007%2fs10826-018-1180-7&partnerID=40&md5=f679a972b9c41cb6ea5b1f867e82f641

DOI: 10.1007/s10826-018-1180-7
ISSN: 10621024
Cited by: 1
Original Language: English