Background: The incidence and survival rates for colorectal cancer in Australia are among the highest in the world. With population growth and ageing there are increasing numbers of colorectal cancer survivors in the community, yet little is known of their ongoing follow up and survivorship care experiences. This study investigated patterns and predictors of follow up and survivorship care received and recommended for adults with colorectal cancer in New South Wales (NSW), Australia. Methods: Cross-sectional analysis within the NSW Bowel Cancer Care Survey, a population-based cohort of adults diagnosed with colorectal cancer between April 2012 and May 2013 in NSW. One year after diagnosis, participants completed a study specific questionnaire about their follow up and survivorship care experience and plans. Logistic regression was used to identify independent predictors of guideline-recommended care. Results: Of 1007 eligible people, 560 (56%) participated in the NSW Bowel Cancer Care Survey with 483 (86% of study participants, 48% of invited sample) completing the survivorship survey. Among these 483 participants, only 110 (23%, 95% Confidence Interval CI 19-27%) had received a written follow up plan, with this more common among migrants, non-urban dwellers and those with little experience of the health system. Of 379 (78%) people treated with curative intent, most were receiving ongoing colorectal cancer follow up from multiple providers with 28% (23-32%) attending three or more different doctors. However, less than half had received guideline-recommended follow-up colonoscopy (46%, CI 41-51%) or carcino-embryonic antigen assay (35%, CI 30-40%). Socio-economic advantage was associated with receipt of guideline-recommended care. While participants reported high interest in improving general health and lifestyle since their cancer diagnosis, few had received advice about screening for other cancers (24%, CI 19-28%) or assistance with lifestyle modification (30%, CI 26-34%). Less than half (47%, CI 43-52%) had discussed their family's risk of cancer with a doctor since their diagnosis. Conclusions: Survivorship care was highly variable, with evident socioeconomic disparities and missed opportunities for health promotion. © 2018 The Author(s).

Surveillance cancer Survivorship disparities Colorectal cancer

personal experience patient care health care survey Registries health care planning Australia health care personnel Follow-Up Studies health insurance register human follow up survivor middle aged Odds Ratio Population Surveillance Survivors colorectal cancer colorectal tumor cancer risk Colorectal Neoplasms cancer screening Aged clinical practice Cross-Sectional Studies cross-sectional study migrant Humans male colonoscopy female Aged, 80 and over prediction very elderly Socioeconomic Factors socioeconomics questionnaire New South Wales Article major clinical study lifestyle modification adult physician Guidelines as Topic cohort analysis health care system survivorship Delivery of Health Care practice guideline immunoassay health care delivery health survey