Journal of Immigrant and Minority Health
Volume 16, Issue 5, 2014, Pages 898-903

Recruitment and retention of under-represented groups with health disparities into clinical trials: A formative approach (Article)

Harrigan R.* , Perez M.H. , Beaudry S. , Johnson C. , Sil P. , Mead K.’ , Apau-Ludlum N.
  • a Department of Complementary and Alternative Medicine, John A. Burns School of Medicine, 651 Ilalo St., Medical Education Building, Honolulu, HI 96813, United States
  • b Department of Complementary and Alternative Medicine, John A. Burns School of Medicine, 651 Ilalo St., Medical Education Building, Honolulu, HI 96813, United States
  • c Department of Complementary and Alternative Medicine, John A. Burns School of Medicine, 651 Ilalo St., Medical Education Building, Honolulu, HI 96813, United States
  • d Department of Complementary and Alternative Medicine, John A. Burns School of Medicine, 651 Ilalo St., Medical Education Building, Honolulu, HI 96813, United States
  • e Department of Medicine, John A. Burns School of Medicine, 651 Ilalo St., Medical Education Building, Honolulu, HI 96813, United States
  • f Department of Complementary and Alternative Medicine, John A. Burns School of Medicine, 651 Ilalo St., Medical Education Building, Honolulu, HI 96813, United States
  • g Department of Complementary and Alternative Medicine, John A. Burns School of Medicine, 651 Ilalo St., Medical Education Building, Honolulu, HI 96813, United States

Abstract

We evaluated the perceived success of recruitment and retention protocols for Native Hawaiian/Pacific Islander/Filipino populations. These three groups were found to have a significantly higher incidence of health disparities than the general population. Training applications of selected vignettes were also generated. Focus groups and questionnaires were used to achieve the objective: identification of themes related to facilitators and deterrents to participation in clinical trials in these populations. This mixed methods approach evaluated promotional materials preferred. Responses to animated videos and vignettes with actors regarding clinical research participation were analyzed. Participants included adults of Hawaiian/Pacific Islander or Filipino ethnicity. Analysis included grounded theory methods, such as constant comparative techniques. The results revealed that attention to the following categories is essential: culturally sensitive knowledge, attitudes, and beliefs related to individuals, families and communities. These themes are recommended as the structure for future interventions to improve participation and retention within these groups. © 2013, Springer Science+Business Media New York.

Author Keywords

Retention Clinical research recruitment Disadvantaged groups

Index Keywords

[No Keywords available]
Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-84873330001&doi=10.1007%2fs10903-013-9786-8&partnerID=40&md5=29648a2d29989f003f27fb335b3fd514
DOI: 10.1007/s10903-013-9786-8
ISSN: 15571912
Cited by: 6
Original Language: English