Journal of Refugee Studies
Volume 24, Issue 4, 2011, Pages 655-671

Human agency and the meaning of informed consent: Reflections on research with refugees (Article)

Hugman R.* , Bartolomei L. , Pittaway E.
  • a School of Social Sciences and International Studies, University of New South Wales, Sydney, NSW 2052, Australia
  • b School of Social Sciences and International Studies, University of New South Wales, Sydney, NSW 2052, Australia
  • c School of Social Sciences and International Studies, University of New South Wales, Sydney, NSW 2052, Australia

Abstract

Recent analysis of the ethics of research with refugees suggests that there are practical and theoretical issues to be addressed in achieving informed consent from participants who are in vulnerable situations. This article reviews the questions that are central to this concern, focusing in particular on the challenge of ensuring that the human agency of refugees is sustained and promoted. A model for research work with refugees is described and discussed, drawn from a participatory action research project, which demonstrates a way in which these core ethical principles can be achieved. © The Author 2011. Published by Oxford University Press. All rights reserved.

Author Keywords

Research Research ethics Refugees Human agency Informed consent

Index Keywords

participatory approach numerical model refugee research and development ethics
Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-82855178901&doi=10.1093%2fjrs%2ffer024&partnerID=40&md5=3dbe57bad3380f8dbc7968237c9987de
DOI: 10.1093/jrs/fer024
ISSN: 09516328
Cited by: 24
Original Language: English