Qualitative Inquiry
Volume 17, Issue 10, 2011, Pages 899-912
Ethics, vulnerability, and speakers of other languages: How university irbs (do not) speak to research involving refugee participants (Article)
Perry K.H.
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a
University of Kentucky, 335 Dickey Hall, Lexington, KY 40506-0017, United States
Abstract
In this study, the author analyzes the websites of 32 universities' Institutional Review Boards (IRBs) to explore two specific issues: (a) how individual IRBs define vulnerable populations, and (b) the guidelines those IRBs offer with respect to participants who may have limited or no English language proficiency. Analysis indicates wide variation in IRB guidelines. Despite a trend to develop separate IRBs for biomedical and social and behavioral research, social science IRBs still use language reflective of medical models for research. Second, there is great variation in the definition of vulnerable populations, as well as in the requirements for including, or excluding, their participation in research. Finally, university IRBs offer little, if any, guidance about conducting research with participants whose first language is not English. The author offers specific recommendations for the ways in which qualitative researchers may advocate for changes in how IRBs conceptualize these types of research studies and participants. © The Author(s) 2011.
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Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-80855139266&doi=10.1177%2f1077800411425006&partnerID=40&md5=764c9272295f1d45f9cc86559d8648d9
DOI: 10.1177/1077800411425006
ISSN: 10778004
Cited by: 23
Original Language: English