Journal of Medical Ethics
Volume 35, Issue 10, 2009, Pages 638-643

Obtaining informed consent: Observations from community research with refugee and impoverished youth (Article)

Nakkash R. , Makhoul J.* , Afifi R.
  • a Department of Health Behaviour and Education, Faculty of Health Sciences, American University of Beirut, Beirut, Lebanon
  • b Department of Health Behaviour and Education, Faculty of Health Sciences, American University of Beirut, Beirut, Lebanon
  • c Department of Health Behaviour and Education, Faculty of Health Sciences, American University of Beirut, Beirut, Lebanon

Abstract

This paper presents challenges facing researchers in applying basic ethical principles while conducting research with youth in a developing country context. A discussion of the cultural and social challenges to adherence to the elements of informed consent: disclosure, comprehension, capacity, voluntariness and consent is presented. The authors argue that the current institutional review board requirements that guide research reflect values and stem from western contexts that may not be fully applicable to non-western contexts. More dialogue is needed among researchers in developing world contexts on challenges of and possible revisions to requirements that maintain respect for persons, beneficence, autonomy and justice, particularly when working with youth. Copyright ©2009 by the BMJ Publishing Group Ltd & Institute of Medical Ethics. All rights reserved.

Author Keywords

[No Keywords available]

Index Keywords

male female refugee Ethics Committees, Research Developing Countries Article poverty informed consent professional standard developing country ethics human Humans Refugees Adolescent Middle East Child
Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-72749128258&doi=10.1136%2fjme.2008.028936&partnerID=40&md5=1bb766fc2f7f06e490f136f02c4059e1
DOI: 10.1136/jme.2008.028936
ISSN: 03066800
Cited by: 15
Original Language: English