Journal of Pain and Symptom Management
Volume 51, Issue 4, 2016, Pages 784-788

End-of-Life Care for Undocumented Immigrants With Advanced Cancer: Documenting the Undocumented (Article)

Jaramillo S. , Hui D.*
  • a Department of General Oncology, M. D. Anderson Cancer Center, Houston, Texas, United States
  • b Department of General Oncology, M. D. Anderson Cancer Center, Houston, Texas, United States, Department of Palliative Care and Rehabilitation Medicine, M. D. Anderson Cancer Center, Houston, Texas, United States

Abstract

There are approximately 11.1 million undocumented immigrants in the United States, with a majority being Latino. Cancer is now the leading cause of death in Latinos. There is little research guiding providers on how to deliver optimal end-of-life care in this population. We describe a case of an undocumented Latino patient with advanced cancer, and provide a review of the literature on end-of-life care in undocumented immigrants. Our patient encountered many challenges as he navigated through the healthcare system in the last months of life. These included delayed diagnosis, limited social support, financial issues, fear of deportation, and language and cultural barriers, which resulted in significant physical and psychological distress. Within the undocumented patient population, there is often a lack of advance care planning, prognostic understanding, mistrust, religious practices, and cultural beliefs that may affect decision making. Given the growing number of undocumented immigrants in the United States, it is important for clinicians and policy makers to have a better understanding of the issues surrounding end-of-life care for undocumented immigrants, and work together to improve the quality of life and quality of end-of-life care for these disadvantaged individuals. © 2016 American Academy of Hospice and Palliative Medicine

Author Keywords

Health care disparities Palliative care immigrants Neoplasms Hispanic Americans terminal care Emigrants

Index Keywords

anxiety hospital admission medically uninsured rectum hemorrhage Hospice Care backache Neoplasms human delayed diagnosis Colitis social support length of stay funding procedures Hispanic Americans Undocumented Immigrants United States Young Adult disease course Humans undocumented immigrant psychology Hispanic inferior vena cava thrombus pathologic fracture male case report Terminal Care Article Fatal Outcome fatality adult pleura effusion distress syndrome Healthcare Disparities health care disparity advanced cancer

Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-84954286931&doi=10.1016%2fj.jpainsymman.2015.11.009&partnerID=40&md5=60572171c320021cf1a9df0eaed0b3ae

DOI: 10.1016/j.jpainsymman.2015.11.009
ISSN: 08853924
Cited by: 13
Original Language: English