Australian and New Zealand Journal of Medicine
Volume 29, Issue 2, 1999, Pages 207-213

Attitudes and information needs of Chinese migrant cancer patients and their relatives (Article)

Huang X. , Butow P.N. , Meiser B. , Goldstein D.
  • a Medical Psychology Unit, Department of Psychological Medicine, University of Sydney, Sydney, NSW, Australia
  • b Medical Psychology Unit, Department of Psychological Medicine, University of Sydney, Sydney, NSW, Australia, Medical Psychology Unit, Department of Medicine, University of Sydney, Sydney, NSW 2006, Australia
  • c Department of Medical Oncology, Prince of Wales Hospital, Sydney, NSW, Australia
  • d Department of Medical Oncology, Prince of Wales Hospital, Sydney, NSW, Australia

Abstract

Background: The information needs of ethnic minorities often differ from that of the dominant culture, leading to dissatisfaction among both patients and health professionals. Aims: This research project aims to identify attitudes towards cancer and associated information and communication needs of Chinese patients and their relatives in Sydney, thereby providing a framework for the provision of culturally appropriate cancer care for Chinese-Australians. Methods: A qualitative data collection strategy was selected as the most appropriate method, because no validated measures are available and no previous research has examined attitudes and needs of Chinese-Australian cancer patients. Patients were recruited from three major teaching hospitals in Sydney and from a Chinese cancer support organisation. Sampling was discontinued when informational redundancy was achieved. Four focus groups and 26 individual telephone interviews were conducted with a total of 36 cancer patients and 12 relatives born in China, Singapore and Malaysia. Results: While individual differences were observed, a majority view was expressed on a range of issues. Non-disclosure of a poor prognosis was favoured, and the role of the family in liaising between health professionals and the patient was emphasised. Patients preferred a confident and clear diagnosis and treatment recommendation. Most patients wished to incorporate Chinese culture-specific treatments into their care. The need for interpreters and psychological and spiritual support was emphasised. Conclusions: Providing information in a culturally sensitive manner will assist doctors in providing optimum care and support for ethnic minority groups in this country.

Author Keywords

Cancer care cross-cultural Chinese-Australians communication

Index Keywords

male patient care female patient attitude Aged patient information Chinese cancer diagnosis cancer patient medical decision making cultural factor cancer therapy Article support group informed consent community care human adult

Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-0032904928&doi=10.1111%2fj.1445-5994.1999.tb00685.x&partnerID=40&md5=3fc8db1c6b6458ed50a937a7044ff04c

DOI: 10.1111/j.1445-5994.1999.tb00685.x
ISSN: 00048291
Cited by: 89
Original Language: English