Australian and New Zealand Journal of Medicine
Volume 29, Issue 2, 1999, Pages 207-213
Attitudes and information needs of Chinese migrant cancer patients and their relatives (Article)
Huang X. ,
Butow P.N. ,
Meiser B. ,
Goldstein D.
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a
Medical Psychology Unit, Department of Psychological Medicine, University of Sydney, Sydney, NSW, Australia
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b
Medical Psychology Unit, Department of Psychological Medicine, University of Sydney, Sydney, NSW, Australia, Medical Psychology Unit, Department of Medicine, University of Sydney, Sydney, NSW 2006, Australia
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c
Department of Medical Oncology, Prince of Wales Hospital, Sydney, NSW, Australia
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d
Department of Medical Oncology, Prince of Wales Hospital, Sydney, NSW, Australia
Abstract
Background: The information needs of ethnic minorities often differ from that of the dominant culture, leading to dissatisfaction among both patients and health professionals. Aims: This research project aims to identify attitudes towards cancer and associated information and communication needs of Chinese patients and their relatives in Sydney, thereby providing a framework for the provision of culturally appropriate cancer care for Chinese-Australians. Methods: A qualitative data collection strategy was selected as the most appropriate method, because no validated measures are available and no previous research has examined attitudes and needs of Chinese-Australian cancer patients. Patients were recruited from three major teaching hospitals in Sydney and from a Chinese cancer support organisation. Sampling was discontinued when informational redundancy was achieved. Four focus groups and 26 individual telephone interviews were conducted with a total of 36 cancer patients and 12 relatives born in China, Singapore and Malaysia. Results: While individual differences were observed, a majority view was expressed on a range of issues. Non-disclosure of a poor prognosis was favoured, and the role of the family in liaising between health professionals and the patient was emphasised. Patients preferred a confident and clear diagnosis and treatment recommendation. Most patients wished to incorporate Chinese culture-specific treatments into their care. The need for interpreters and psychological and spiritual support was emphasised. Conclusions: Providing information in a culturally sensitive manner will assist doctors in providing optimum care and support for ethnic minority groups in this country.
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https://www.scopus.com/inward/record.uri?eid=2-s2.0-0032904928&doi=10.1111%2fj.1445-5994.1999.tb00685.x&partnerID=40&md5=3fc8db1c6b6458ed50a937a7044ff04c
DOI: 10.1111/j.1445-5994.1999.tb00685.x
ISSN: 00048291
Cited by: 89
Original Language: English