Journal of Developmental and Physical Disabilities
Volume 31, Issue 4, 2019, Pages 519-539
Snakes and Ladders: Barriers and Facilitators Experienced by Immigrant Families when Accessing an Autism Spectrum Disorder Diagnosis (Article)
Rivard M.* ,
Millau M. ,
Magnan C. ,
Mello C. ,
Boulé M.
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a
Université du Québec à Montréal, Institut de santé mentale de Montréal, Montréal, QC, Canada
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b
Université du Québec à Montréal, Institut de santé mentale de Montréal, Montréal, QC, Canada
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c
Université du Québec à Montréal, Institut de santé mentale de Montréal, Montréal, QC, Canada
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d
The Pennsylvania State University, Berks, Reading, PA, United States
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e
Université du Québec à Montréal, Institut de santé mentale de Montréal, Montréal, QC, Canada
Abstract
There presently exists limited information or studies on means to support immigrant families as they attempt to access quality services for children with autism spectrum disorder (ASD). An ASD diagnosis is the gateway to support services and adapted interventions. Yet, studies show that immigrant families typically experience longer delays in obtaining a diagnosis and more challenges in gaining access to services. Twenty-four families who immigrated to Québec (Canada) participated in semi-structured interviews in which they listed the obstacles and facilitators encountered in their service trajectory to obtain a diagnosis for their child. Families’ attitudes toward ASD, as a function of native culture, and their advice to other families in a similar situation are were also reported. Obstacles most often mentioned by participants were the waiting period for diagnostic services, feelings of social isolation, and a lack of professionals’ knowledge about ASD. Parental advocacy, the competency and expertise of the professionals who conducted the evaluation, and parental education and awareness of ASD were the most frequently named facilitators. Finally, the most common recommendations made to other parents were to be persistent and proactive. In light of these reported experiences and perceptions, a series of clinical recommendations are provided to guide ASD evaluation practices in multicultural communities. © 2019, Springer Science+Business Media, LLC, part of Springer Nature.
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Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-85060530088&doi=10.1007%2fs10882-018-9653-6&partnerID=40&md5=856135da61d062951055ef1e4f40b459
DOI: 10.1007/s10882-018-9653-6
ISSN: 1056263X
Original Language: English