Journal of Immigrant and Minority Health
Volume 21, Issue 1, 2019, Pages 123-128

Lessons Learned in Clinical Research Recruitment of Immigrants and Minority Group Members with First-Episode Psychosis (Article)

Hernandez M.* , Franco R. , Kopelowicz A. , Hernandez M.Y. , Mejia Y. , Barrio C. , López S.R.
  • a Steve Hicks School of Social Work, University of Texas at Austin, 1925 San Jacinto Boulevard (D3500), Austin, TX 78712-1405, United States; Y., School of Social Work, California State University, Los Angeles, Los Angeles, CA, United States
  • b Department of Psychiatry & Behavioral Sciences, University of California, Los Angeles, Los Angeles, CA, United States
  • c Department of Psychiatry & Behavioral Sciences, University of California, Los Angeles, Los Angeles, CA, United States
  • d [Affiliation not available]
  • e Department of Psychology, University of North Carolina at Greensboro, Greensboro, NC, United States
  • f Suzanne Dworak-Peck School of Social Work, University of Southern California, Los Angeles, CA, United States
  • g Department of Psychology, University of Southern California, 3620 S. McClintock Avenue, Los Angeles, CA 90089-1061, United States

Abstract

Recruitment of immigrants and racial and ethnic minorities with first-episode psychosis (FEP) for research studies presents numerous challenges. We describe methods used to recruit 43 U.S. Latinos with FEP and their family caregivers (n = 41) participating in a study to reduce duration of untreated psychosis. A key challenge was that patients were not continuing treatment at an outpatient clinic, as initially expected. To facilitate identification of patients prior to outpatient care, we collaborated with clinic and hospital administrators. Many patients and families were grappling with the aftermath of a hospitalization or adjusting to a diagnosis of a serious mental illness. A considerable amount of time was devoted to addressing participants’ concerns and when possible, facilitating needed services. Our experience underscores the importance of establishing long-term relationships through multiple contacts with patients, families, and stakeholders to address recruitment barriers among underserved groups with FEP. © 2018, Springer Science+Business Media, LLC, part of Springer Nature.

Author Keywords

families First-episode psychosis Engagement recruitment Latinos

Index Keywords

patient care Antipsychotic Agents Caregivers minority group human middle aged psychosis Biomedical Research medical research professional-patient relationship Professional-Patient Relations ethnology procedures Hispanic Americans United States Young Adult Humans migrant Hispanic Adolescent Minority Groups male Emigrants and Immigrants female Socioeconomic Factors Psychotic Disorders socioeconomics Continuity of Patient Care organization and management patient compliance program evaluation adult neuroleptic agent patient selection caregiver
Link
https://www.scopus.com/inward/record.uri?eid=2-s2.0-85040914558&doi=10.1007%2fs10903-018-0704-y&partnerID=40&md5=cfd40ee1726a4d40ce5fdd3a3be983ac
DOI: 10.1007/s10903-018-0704-y
ISSN: 15571912
Cited by: 2
Original Language: English